home

 

Hi!

My name is Jackson and I am 6 years old. My dad and mom made this website for me to keep in touch with the people I care about.

On September 10th 2004 I was diagnosed with Krabbe Disease, a rare and usually fatal disease that affects the myelin in my nervous system. Shortly after I was diagnosed, I travelled to Duke University Medical Center in North Carolina to get a stem cell transplant that saved my life.

Please check out my website to learn more about my story, read my mom's journal updates, and check out some pictures of me and my family. Thanks for stopping by!

               Love,
                    Jackson